Searching for cancer information online can be overwhelming and confusing. We’re here to change that. MyCancerHaven makes it easy to find trustworthy, up-to-date information about your specific type of cancer. Our expert-curated resources are designed to give you the answers you need—in one place.
We focus on what matters most to patients, offering knowledge tailored by cancer type. Our current specialty is blood cancers, including Amyloidosis, Leukemia, Lymphoma, Multiple Myeloma, Myelodysplastic Syndrome, and Myelofibrosis
Join MyCancerHaven to help find reliable answers to your questions—so you can focus on your health, not on searching.
Ask questions of cancer experts—get the answers you need
MyCancerHaven provides a unique opportunity to ask questions to leading cancer specialists. Your questions help shape the content we share, ensuring the patient voice is heard by leading experts.
We believe that when patients, caregivers, and healthcare providers learn from one another, cancer care improves. That’s why we turn your questions into meaningful educational resources, blog posts, video podcasts, and more, all tailored by your cancer type.
Additionally, our community boards are moderated by cancer experts who respond or guide you to trusted information. Join the conversation — and make your voice heard. HIPAA Compliance & Terms of Use
Offering a variety of educational resources including:
Latest News & Blog
Videos & Podcasts
Disease Information & FAQs
Receive the latest news
We are focused on providing the most up-to-date information that can help improve the journey of patients with cancer and make a positive impact on their lives including:
· New research and innovative solutions · Treatment options and information on medicines · Ways to address the challenges of cancer care
Members can find the latest information on our ‘News’ page and ‘Blog’, as well as in our weekly emails, videos, ‘Groups’ and more.
MyCancerHaven members can view videos and video podcasts tailored to their cancer type on topics such as:
Hear directly from cancer experts
Treatments & medications
Approaches to care
New research & studies
Clinical trials
Personalized and maintenance therapies
Partner resources
These informative videos are available on demand. In addition, MyCancerHaven occasionally hosts physician and expert roundtables and live events that are available via our Facebook and YouTube pages.
Find Tailored Information, FAQs and Podcast Videos
Amyloidosis
Amyloidosis is a rare but serious disease caused by an accumulation of proteins, specifically misfolded proteins, in the form of insoluble fibers known as amyloids.
These amyloid deposits can interfere with the normal functions of various organs they infiltrate, resulting in a wide range of potential health issues. There are multiple types of amyloidosis, each categorized based on the type of protein involved and the organs affected.
Common Symptoms:
Fatigue
Irregular heartbeat
Shortness of breath
Unintentional weight loss
welling in the legs/ankles
Amyloidosis FAQs
What are ‘Home’ and ‘Guest’ categories?
The “Home” category is the cancer type the member selects at time of initial registration. For patients, family members, and caregivers this category allows the users to have maximum permissions. Users have a more limited set of permissions in “Guest” categories, and they have read only permissions for other features.
Can I have more than one ‘Home’ category?
To have ‘Home’ permissions in more than one category, users would need to create more than one account (for this a separate e-mail account will be needed for initial account creation).
What does ‘Blogs’ include?
MyCancerHaven ‘Blogs’ are used by administrators to share information with the community, as well as highlight blog content from other sources.
I’m a healthcare professional looking to create a ‘Blog’, how do I do that?
Healthcare professionals with a PIN number and select users provided a PIN can create blog posts within a 500-word limit. A PIN number can be obtained by messaging us at contact@mycancerhaven.org. Other healthcare professionals can comment on blog posts.
What is ‘My Story’?
‘My Story’ is a feature for patients to post photographs and share and update information on their cancer journey with the community, offering encouragement to others and finding comfort in knowing you are not alone.
These amyloid deposits can interfere with the normal functions of various organs they infiltrate, resulting in a wide range of potential health issues. There are multiple types of amyloidosis, each categorized based on the type of protein involved and the organs affected.
Common Symptoms:
Fatigue
Irregular heartbeat
Shortness of breath
Unintentional weight loss
welling in the legs/ankles
Amyloidosis FAQs
What are ‘Home’ and ‘Guest’ categories?
The “Home” category is the cancer type the member selects at time of initial registration. For patients, family members, and caregivers this category allows the users to have maximum permissions. Users have a more limited set of permissions in “Guest” categories, and they have read only permissions for other features.
Can I have more than one ‘Home’ category?
To have ‘Home’ permissions in more than one category, users would need to create more than one account (for this a separate e-mail account will be needed for initial account creation).
What does ‘Blogs’ include?
MyCancerHaven ‘Blogs’ are used by administrators to share information with the community, as well as highlight blog content from other sources.
I’m a healthcare professional looking to create a ‘Blog’, how do I do that?
Healthcare professionals with a PIN number and select users provided a PIN can create blog posts within a 500-word limit. A PIN number can be obtained by messaging us at contact@mycancerhaven.org. Other healthcare professionals can comment on blog posts.
What is ‘My Story’?
‘My Story’ is a feature for patients to post photographs and share and update information on their cancer journey with the community, offering encouragement to others and finding comfort in knowing you are not alone.
Lymphoma is a type of cancer affecting the lymphatic system, which is part of the immune system. Lymphoma occurs when lymphocytes, a type of white blood cell, grow and multiply uncontrollably.
These amyloid deposits can interfere with the normal functions of various organs they infiltrate, resulting in a wide range of potential health issues. There are multiple types of amyloidosis, each categorized based on the type of protein involved and the organs affected.
Common Symptoms:
Fatigue
Irregular heartbeat
Shortness of breath
Unintentional weight loss
welling in the legs/ankles
Amyloidosis FAQs
What are ‘Home’ and ‘Guest’ categories?
The “Home” category is the cancer type the member selects at time of initial registration. For patients, family members, and caregivers this category allows the users to have maximum permissions. Users have a more limited set of permissions in “Guest” categories, and they have read only permissions for other features.
Can I have more than one ‘Home’ category?
To have ‘Home’ permissions in more than one category, users would need to create more than one account (for this a separate e-mail account will be needed for initial account creation).
What does ‘Blogs’ include?
MyCancerHaven ‘Blogs’ are used by administrators to share information with the community, as well as highlight blog content from other sources.
I’m a healthcare professional looking to create a ‘Blog’, how do I do that?
Healthcare professionals with a PIN number and select users provided a PIN can create blog posts within a 500-word limit. A PIN number can be obtained by messaging us at contact@mycancerhaven.org. Other healthcare professionals can comment on blog posts.
What is ‘My Story’?
‘My Story’ is a feature for patients to post photographs and share and update information on their cancer journey with the community, offering encouragement to others and finding comfort in knowing you are not alone.
Multiple myeloma is a type of cancer affecting plasma cells, which are a type of white blood cell that produce antibodies to help the body fight infections.
These amyloid deposits can interfere with the normal functions of various organs they infiltrate, resulting in a wide range of potential health issues. There are multiple types of amyloidosis, each categorized based on the type of protein involved and the organs affected.
Common Symptoms:
Fatigue
Irregular heartbeat
Shortness of breath
Unintentional weight loss
welling in the legs/ankles
Amyloidosis FAQs
What are ‘Home’ and ‘Guest’ categories?
The “Home” category is the cancer type the member selects at time of initial registration. For patients, family members, and caregivers this category allows the users to have maximum permissions. Users have a more limited set of permissions in “Guest” categories, and they have read only permissions for other features.
Can I have more than one ‘Home’ category?
To have ‘Home’ permissions in more than one category, users would need to create more than one account (for this a separate e-mail account will be needed for initial account creation).
What does ‘Blogs’ include?
MyCancerHaven ‘Blogs’ are used by administrators to share information with the community, as well as highlight blog content from other sources.
I’m a healthcare professional looking to create a ‘Blog’, how do I do that?
Healthcare professionals with a PIN number and select users provided a PIN can create blog posts within a 500-word limit. A PIN number can be obtained by messaging us at contact@mycancerhaven.org. Other healthcare professionals can comment on blog posts.
What is ‘My Story’?
‘My Story’ is a feature for patients to post photographs and share and update information on their cancer journey with the community, offering encouragement to others and finding comfort in knowing you are not alone.
These amyloid deposits can interfere with the normal functions of various organs they infiltrate, resulting in a wide range of potential health issues. There are multiple types of amyloidosis, each categorized based on the type of protein involved and the organs affected.
Common Symptoms:
Fatigue
Irregular heartbeat
Shortness of breath
Unintentional weight loss
welling in the legs/ankles
Amyloidosis FAQs
What are ‘Home’ and ‘Guest’ categories?
The “Home” category is the cancer type the member selects at time of initial registration. For patients, family members, and caregivers this category allows the users to have maximum permissions. Users have a more limited set of permissions in “Guest” categories, and they have read only permissions for other features.
Can I have more than one ‘Home’ category?
To have ‘Home’ permissions in more than one category, users would need to create more than one account (for this a separate e-mail account will be needed for initial account creation).
What does ‘Blogs’ include?
MyCancerHaven ‘Blogs’ are used by administrators to share information with the community, as well as highlight blog content from other sources.
I’m a healthcare professional looking to create a ‘Blog’, how do I do that?
Healthcare professionals with a PIN number and select users provided a PIN can create blog posts within a 500-word limit. A PIN number can be obtained by messaging us at contact@mycancerhaven.org. Other healthcare professionals can comment on blog posts.
What is ‘My Story’?
‘My Story’ is a feature for patients to post photographs and share and update information on their cancer journey with the community, offering encouragement to others and finding comfort in knowing you are not alone.
Myelofibrosis is a chronic and progressive bone marrow disorder characterized by the replacement of bone marrow with fibrous scar tissue. This disruption affects the body’s ability to adequately produce blood cells.
These amyloid deposits can interfere with the normal functions of various organs they infiltrate, resulting in a wide range of potential health issues. There are multiple types of amyloidosis, each categorized based on the type of protein involved and the organs affected.
Common Symptoms:
Fatigue
Irregular heartbeat
Shortness of breath
Unintentional weight loss
welling in the legs/ankles
Amyloidosis FAQs
What are ‘Home’ and ‘Guest’ categories?
The “Home” category is the cancer type the member selects at time of initial registration. For patients, family members, and caregivers this category allows the users to have maximum permissions. Users have a more limited set of permissions in “Guest” categories, and they have read only permissions for other features.
Can I have more than one ‘Home’ category?
To have ‘Home’ permissions in more than one category, users would need to create more than one account (for this a separate e-mail account will be needed for initial account creation).
What does ‘Blogs’ include?
MyCancerHaven ‘Blogs’ are used by administrators to share information with the community, as well as highlight blog content from other sources.
I’m a healthcare professional looking to create a ‘Blog’, how do I do that?
Healthcare professionals with a PIN number and select users provided a PIN can create blog posts within a 500-word limit. A PIN number can be obtained by messaging us at contact@mycancerhaven.org. Other healthcare professionals can comment on blog posts.
What is ‘My Story’?
‘My Story’ is a feature for patients to post photographs and share and update information on their cancer journey with the community, offering encouragement to others and finding comfort in knowing you are not alone.
MyCancerHaven was created to be a steady anchor for anyone navigating a cancer diagnosis—patients, caregivers, and healthcare providers alike. We believe that supporting patients’ emotional well-being and helping them to foster meaningful connections are just as essential as treating the disease itself. With this in mind, we have three distinct offerings that are designed to guide, uplift, and connect people throughout their cancer journey.
Community Boards
Find Support & Answers, Making Meaningful Connections
Read More
Community Boards
Find Support & Answers, Making Meaningful Connections
The center and heart of our community features opportunities for patients, their family members, and caregivers to connect, ask questions, and support one another through MyCancerHaven’s Groups and one-on-one messaging features. This powerful resource provides a safe space to share your story and express your emotions with people who understand and is overseen by experts to ensure you receive the best information.
MyCancerHaven is led by cancer experts, and the educational resources and information we provide is curated by experts. This important distinction helps to ensure that the information cancer patients and caregivers receive is as accurate, up-to-date as possible.
Valuable Resources from Vetted Partners & Organizations
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Partner Resources
Valuable Resources from Vetted Partners & Organizations
To provide you with the most trusted and valuable information, MyCancerHaven partners with leading cancer organizations across the U.S. These collaborations give you direct access to expert guidance, up-to-date research, and the latest advancements in cancer care. By working with respected institutions, we ensure the information you receive is accurate, relevant, and empowering. Our goal is to help you make informed decisions with confidence every step of the way.
